Latest news and updates from DMD Pathfinders and our members.


DMD Pathfinders February Updates

This has been a more visibly busy month for us, we have been recruiting, attended conferences and meetings, and discussing our aims as a charity.  Our chair and CEO explain it far better than I ever could so without further ado here’s some messages from them.   Mark Chapman Chair of DMD Pathfinders On behalf… Read more »

DMD Pathfinders January Update

We haven’t been quite so visible in our activities this month, this was anticipated and planned for by us at the end of last year, we knew January would be quiet due to few events happening early in the year and other organisations catching up after the Christmas/New Year break, our CEO was also moving… Read more »

Pathfinders logo surrounded by a wreath

Monthly Roundup and Seasons Greetings 2018

This monthly roundup will be slightly different as we reflect on our year here at DMD Pathfinders. Reflection This year has been a busy one and the charity has been growing at a steady pace, we have been developing as a team, raising money, earning more respect among professionals, charities and the community in general…. Read more »

DMD Pathfinders logo

Monthly Roundup November 2018

This is a new idea we have come up with to keep people updated with what we at DMD Pathfinders have been doing each month, it will try to compile the information from our various outlets, and as we get more used to it probably stuff that the charity has done on in the background,… Read more »

DMD Pathfinders table at the Action Duchenne International Conference

Reflecting on the Action Duchenne conference

BY JON REY-HASTIE CEO OF DMD PATHFINDERS Today I have been taking a more leisurely pace to recover from a really busy weekend at the Action Duchenne conference. I found it particularly tiring this year, probably because I have had to coordinate it or dealing with a busy and extended moving process. As a result… Read more »

Getting research and treatments to adults

BY JON REY-HASTIE CEO, DMD Pathfinders  Last Friday DMD Pathfinders co-hosted a workshop with Duchenne UK dedicated to research for adults. Specifically, in the context of a rapidly developing research pipeline of new treatments for DMD, we were asking: how can we ensure these treatments benefit adults? The meeting was held at the International Centre… Read more »

DMD Pathfinders Nutrition Guide now out!

Information and advice on nutrition for adults with DMD. DMD Pathfinders is delighted to launch our Nutrition Guide for adults with Duchenne. We have worked with  health professionals from around the world to pull together existing best practice and experiences of adults  with DMD into a useful resource. User experiences were gathered from a survey of… Read more »

Join us at our NMD Fest event on 18-19 July

NMD Fest – 18-19 July, at the NMC, Winsford, Cheshire. DMD Pathfinders and the Neuromuscular Centre are hosting NMD Fest, a two day event to link up adults with DMD and other neuromuscular conditions to learn from each other and have some fun. Find out about assistive technology solutions, sign up to our peer leaders… Read more »

NOW CLOSED: Share your attitudes towards DMD research in our new survey

DMD Pathfinders and Duchenne UK are carrying out this survey into attitudes towards DMD research among adults with the condition. This will help demonstrate to charities, pharmaceutical companies and regulators whether there is a need for adult trials, and will help us to understand what adults would like research to focus on as well as… Read more »