Latest news and updates from DMD Pathfinders and our members.


Jamie sat in front of a fountain

CREATE: My Pandemic Story – Jamie

Jamie’s Pandemic Story In this series of articles, we will shine a light on the creativity, productivity and positivity that has emerged in our communities during lockdown. In this first article, our CEO Jamie talks about their experiences of writing during lockdown When lockdown started, I think I went into it in a better position… Read more »

Trustee in me

I’m Sarah and I am delighted to be joining Pathfinders Neuromuscular Alliance as a trustee. I have Ullrich CMD also know as Collagen VI myopathy. I have volunteered with my local Citizens Advice on the Research & Campaigns Team for the past 13 years and with MDUK, chiefly as one of the mods on their… Read more »

My new role as a Trustee

Hello everyone, my name is Kerry Thompson I’m a disability blogger and activist. it’s lovely to meet you all, I’m super excited to announce my new role within the Pathfinders Neuromuscular Alliance as a Trustee I looking forward to taking on this new challenge/role, sharing my knowledge and experiences along the way.  A little about… Read more »

Welcome to Jamie, our new CEO (job share)!

Hi! I’m Jamie Hale, and I’m the new job-share CEO, working with Jon Rey-Hastie as we take Pathfinders forward into the future. I’m delighted to be working for Pathfinders, having first benefitted from the guides over the past few years, and then had a wonderful experience at the mini-conference this summer. To be appointed into… Read more »

Rob sat in front of his greenhouse

Rob’s Gardening Guide – Starting off Small

BY ROBERT SLEIGHT If you have just decided that you want to start a vegetable garden then good for you. At this point there is one really good piece of advice I would like to give you to start you on your gardening journey. That piece of advice is to start small. Don’t try and… Read more »

Two players from opposite teams tackling in a powerchair football match inside a sports hall

Scottish Powerchair Football Awards 2020 featuring Connor

BY RYAN DACK Earlier this month saw the annual Scottish Powerchair Football Awards – a celebration of the seasons accomplishments and a chance to recognize individual achievement. Due to current circumstances the event was virtual and held via Facebook and Twitter. A first for everyone. I had the opportunity to speak with Championship Top Goal… Read more »

Rob’s Gardening Guide – An Introduction

BY ROBERT SLEIGHT Let’s face it, when you have quite a serious disability that includes mobility impairments it limits a lot of things that you can do with your time. I used to love reading books, playing with Lego, videogames and building models. Those days are gone but with technology I can do most of… Read more »

DMD Pathfinders is changing

We have big news! DMD Pathfinders is changing to become Pathfinders Neuromuscular Alliance. After much deliberation and discussion, the members of DMD Pathfinders have agreed to widen the charity to support people with other neuromuscular conditions as well as Duchenne. As part of this change, we will be welcoming new members and recruiting new trustees… Read more »

Bobby Shearer relaxing in the garden

Getting used to living with a tracheostomy

BY BOBBY SHEARER So far my health during my life with Duchenne has been pretty dope. I’ve never had any real problems apart from the obvious. That changed a bit early last year when I had a bad chest infection, where I had to have a trache fitted. A trache (or tracheostomy) is a small… Read more »