Blog

Latest news and updates from DMD Pathfinders and our members.

News

Bobby Shearer relaxing in the garden

Getting used to living with a tracheostomy

BY BOBBY SHEARER So far my health during my life with Duchenne has been pretty dope. I’ve never had any real problems apart from the obvious. That changed a bit early last year when I had a bad chest infection, where I had to have a trache fitted. A trache (or tracheostomy) is a small… Read more »

Adaptive Android

Last week it was our Summer Miniconf and we had some fantastic speakers, one of them was Jamie Hale who spoke to us about adaptive apps for android. It was so good, we thought we would share it again. Have a read! While iPhone has quite a few accessibility settings built in, with Android there’s… Read more »

OPINION: The coronavirus shows up the weakness of our social values

This pandemic has hammered home the point that as the most vulnerable in our society, we are ultimately expendable in times of crisis. That the values that underpin our way of life, that tell us, as vulnerable people, we will be protected and embody our humanity as a society, can so easily be cast aside.

Keep Smiling

BY MITCH COLES All of our lives have changed drastically over the last week. We have been confronted with COVID-19, which has gone from a social media meme to absolute devastation. As sad as the many cases and subsequent untimely deaths are, us yet affected directly have been dealing with the unraveling of our day-to-day… Read more »

Mark Chapman’s 50th birthday

On Sunday 19th April DMD Pathfinders is holding an online celebration to mark our Chair of Trustees Mark Chapman’s 50th birthday. An amazing milestone for an adult with Duchenne muscular dystrophy. You can join us on the day by signing up to the Facebook event  You can donate to DMD Pathfinders on our Virgin Giving… Read more »

DMD Pathfinders logo

Some advice from the Royal Brompton & Harefield NHS Foundation Trust

The Royal Brompton & Harefield NHS Foundation Trust have kindly given us permission to share the following advice sheet that has been sent to some patients. We would like to state that the situation with COVID-19 is fast changing and advice may change at any time.  Also everyone should consult their own specialists and hospitals for… Read more »

Coronavirus Bill could drive disabled people into crisis

Coronavirus Bill could drive disabled people into crisis   We have significant concerns about the Coronavirus Bill currently going through Parliament. While we recognise the efforts to maintain critical services during the Covid-19 pandemic, we are concerned that aspects of the bill removing duties under the Care Act could in fact drive disabled people into crisis and increase pressure… Read more »

My Anniversary

BY MITCH COLES I started working for DMD Pathfinders a whole year ago. I went from volunteering for the charity, writing the odd article or doing the odd talk, to a full-blown employee. It shows that hard work pays off in the end. I was looking for permanent work for a very long time and… Read more »

Guidelines concerning COVID-19 - Do wash your hands with soap and water often – do this for at least 20 seconds always wash your hands when you get home or into work use hand sanitiser gel if soap and water are not available cover your mouth and nose with a tissue or your sleeve (not your hands) when you cough or sneeze put used tissues in the bin straight away and wash your hands afterwards try to avoid close contact with people who are unwell Don't do not touch your eyes, nose or mouth if your hands are not clean

DMD Pathfinders statement regarding Coronavirus (COVID-19)

As a charity we would like to address the current situation regarding Coronavirus (COVID-19).  We who have Duchenne Muscular Dystrophy are at a high risk of complications arising from any respiratory type infection, so Coronavirus (COVID-19) is a source of concern. The official UK government description says A coronavirus is a type of virus. As a… Read more »

January 2020 Update – Looking Forward

The January 2020 Update roundup will mainly be a look forward to our plans for the upcoming year.  A big highlight of this year will be DMD Pathfinders Chair of trustees, Mark Chapman’s, Birthday.  Mark will be turning 50 this year, this is something we feel should be celebrated, so celebrate we will! We will be… Read more »