Monthly Roundup October and November 2019

First of all apologies for missing the round up last month, I won’t give excuses but will try to not miss any more, so without further ado here’s our Monthly Roundup October and November 2019.

We have had a busy couple of months with meetings, conferences, challenges and even our Christmas Party.

Mitch sitting outside the NMC in Cheshire

In October our development worker Mitch attended the NMC GameChangers Fest, you can hear all about this great event in Mitch’s blog post.

Tom Hardwick, who recently got married, has recorded a video on relationships for us which we will release soon.

Action Duchenne logo

We held several sessions at the annual Action Duchenne International Conference again this year.  We always enjoy sharing our knowledge and experience, which we hope will help others.  You can find videos of our sessions on the DMD Pathfinders facebook page’s video section.

Mitch visited Children’s Hospice South West’s Charlton Farm again for a special activities weekend.  Mitch discussed how DMD Pathfinders helps young people with Duchenne and joined in with the fun activities.  You can read all about it in his blog post.

Our online pub quiz also went well, with lots of fun had by all.  Unfortunately we didn’t achieve the numbers we would have liked.  As a charity one of our aims is to encourage social interaction so we really want as many people being reached as possible.  We are now discussing different formats which we hope may get more engagement.

Jon Hastie at Stratford ready to board the central line

Jon our CEO took part in a fundraising challenge in partnership with Alan Benson of Transport for All.  The challenge was to visit all the step-free tube stations in London  in the quickest times.  I was exhausting for both Jon and Alan but they completed the challenge of 78 Step Free Tube Stations visited in one day!

Daniel outside his old university Oxford Brookes

Our Trustee Daniel attended MDUK’s annual spirit of Christmas concert at Gloucester Cathedral, meeting others with Duchenne and having a lovely evening of Christmas Carol’s and speeches.  Daniel was also interviewed by the local press about his life, Duchenne and the importance of charities like DMD Pathfinders.

Wheelchair painting

DMD Pathfinders hosted a fun Christmas party at Helen and Douglas House in Oxford.  Great fun was had by all, with board games, Christmas Dinner, chatting and wheelchair painting!

I’m sure there’s lots I’ve missed, but until the next time everyone here at DMD Pathfinders wishes you a great festive season and a Happy New Year.

Helping DMD Pathfinders

You can help support DMD Pathfinders by donating at Virgin Money Giving, interacting with us on FacebookTwitter and YouTube, and using our social media hashtag #DMDAdultLiving when sharing stories of adults living with Duchenne Muscular Dystrophy.  You can also contact us directly at or 01273 252555.