Monthly Roundup April 2019

Again there’s been lot’s going on at DMD Pathfinders this month, the first thing you may notice is we now have a new donate button in the sites header!  We had been using MyDonate but this service is due to shutdown soon.  After trying to get a charity PayPal account and being denied, with them refusing to give a decent explanation and just saying “The decision is final”, we chose to use Virgin Money Giving instead.  Donations are very important for a small charity like ours so it was a priority to get something sorted quickly!

Games Night

Games Night poster - Monday 6th May 7pm

We are hosting another games night on Monday the 6th of May from 7 to 9 pm (GMT +1).  We have done a lot of preparation for this, from promotion to testing out our systems.  This time we are hoping things will be slightly more organised, although it’s still a casual event so don’t expect a rigid schedule, just some fun!

Social Events

Social events are something else we are thinking of developing, more than just larger get togethers We’d like some small, casual events where young adults with Duchenne can get together, have a chat and share experiences.  If you are interested or have any ideas about this please get in touch, our contact details are at the bottom of this post.

Trips and Attending Events

Drake on stage at the O2 in London

Our new development worker Mitch has been very busy this month, alongside performing his new role he has also visited Amsterdam and attended, and written a blog post for us, about the Drake concert in London.  Mitch has some good tips in his posts and shows that having Duchenne need not stop you doing things you love and also having a job!

Brendan Casey watching an Arsenal match at the Emirates Stadium

Brendan Casey also had some good experiences this month, he travelled all the Way from Northern Ireland to visit The Harry Potter experience and also watch an Arsenal match at the Emirates Stadium, again proving you can still have fun while living with Duchenne.

Development Workers

I’m sure you have all noticed more output from us on social media and in other ways, a lot of this is down to having our new development workers.  Both are doing a great job in front of, and behind, the scenes.  They recently got together for a training day which was a great success, we are looking forward to them taking their new knowledge forward and coming up with new ideas and projects.

A Request for new Trustees

If you or anyone you know is interested in becoming a trustee for DMD Pathfinders please get in touch, we are still looking for people passionate about helping adults with Duchenne Muscular Dystrophy.

As a trustee you will be helping shape the future of DMD Pathfinders, meetings are held online every couple of months so no travel is required.  There are many exciting opportunities also available when you become a trustee, from representing the charity at events, working alongside large organisations, fundraising and more.

If you are interested then please contact us at, ring on 01273 252555 or talk to us on Facebook.

That’s All Folks

You can help support DMD Pathfinders by donating at Virgin Money Giving, interacting with us on Facebook, Twitter and YouTube, and using our social media hashtag #DMDadultliving when sharing stories of adults living with Duchenne Muscular Dystrophy.  You can also contact us directly at or 01273 252555.