BY MITCH COLES
On the weekend I was at Children’s Hospice South West’s Charlton Farm again, after being there in the summer to talk to them about what we can offer. This time we were there as part of their weekend teen event activities. They were having an I’m A Celebrity… Get Me Out Of Here themed weekend, complete with decorations, a trip to Longleat’s Festival of Light and their own version of I’m A Celeb’s bushtucker trials that included eating crickets and picking through fish guts. Everyone was fully into it, which was brilliant. They even looked like they had spent some time in the jungle.
We were invited for lunch and to talk a little bit about what we do at DMD Pathfinders and how we can help to support young people with Duchenne. After, we got to play some board games with the guys. I’d met a couple of them before, but it was good to meet some new faces as well. The guys from board game cafe Chance and Counters in Bristol brought a long some games for everyone to play and I actually won! This is the same place the Board Game Hangout will take place. Anyway,I’m officially the King of Tokyo and I did it in style. I was spreading the word about our upcoming Online Pub Quiz event, us being at the Action Duchenne Conference and our Xmas Party in December. I hope to speak to them again soon and hopefully our events interest them.
Next up on the agenda with CHSW is to travel down to their original hospice Little Bridge House in the new year to do something similar. I used to go to LBH when I was younger and this weekend, it was really nice to be at Charlton Farm, as it reminded me of the good old days. I’d met an old friend from there on the weekend too, so this weekend brought back lots of fun memories. We know what a hospice is about, but the people make you forget instantly. Especially with their teen events, with the different activities and outsiders like us being given a warm welcome. We want to have some kind of impact at these types of events and I feel like we did. We hope we can work with Charlton Farm again in the future.