Category: General

Monthly Roundup July 2019

social meetup flyer 31/8/19? Come have a drink with us at @No1Harbourside

We hope you are all enjoying the sunshine and summer in general, this time of year personally makes me want to get out and do more!  First up this month is a catch up from DMD Pathfinders chair, Mark Chapman. Mark’s Catch up (written by Mark Chapman, Chair of DMD Pathfinders) I started this month… Read more »

Working with Hospices: My Visit to Children’s Hospice South West

BY MITCH COLES When I first started in my role as Development Worker at Pathfinders, I was asked to highlight some people and organisations who we could possibly work with in the future. Straight away I thought of a charity that means the world to me, Children’s Hospice South West. From the age of seven,… Read more »

Monthly Roundup June 2019

Mark Chapman sitting between Shelley Simmonds CEO of Action Duchenne and their Scottish Advocacy officer, John Miller

A busy month again for us here at DMD Pathfinders, apologies for not getting this out sooner  but I have had care issues (a common thing for us with Duchenne) and various personal things to deal with.  Enough about me for now though, let’s get on with the roundup. Our games night was great fun… Read more »

Keech Event

On Saturday Jon, Tyran and Mitch headed to Keech Hospice in Luton for our information social day. We were given a warm welcome from Jackie Purdy who works at the hospice and received valuable input from Andrew Rose, a local neuromuscular advisor who helped in putting this event together. We covered a number of topics… Read more »

Monthly Roundup May 2019

Sports Night poster - Monday the 8th of July from 7 pm to 9 pm

Another month already!  Well let’s get started with everything going on here at DMD Pathfinders.  We’ll begin with a few events we have planned. Games Night After the success of our previous games night we are holding another one on the 19th of June at 7 pm, everyone is welcome and we are hoping this… Read more »

Meet Tyran, Our New Development Worker

Tyran in front of a rally car with two dinosaurs standing near him

Meet Tyran, Our New Development Worker Hi, I am Tyran Hawthorn, one of the new Development Workers at DMD Pathfinders.  I currently stay in Clanfield with my parents but have my own critically trained care team which enables me to be self sufficient and live relatively independently. I’ve also been to university where I studied… Read more »

Games Night Recap

Games Night poster - Monday 6th May 7pm

On Monday we held our Games Night. The plan was to play games on Jackbox and Boardgame Arena. In the end we opted to just use Jackbox, though others could still set up games through Boardgame Arena and also play their own console games. We used Discord as our communication hub, that supports text and… Read more »

Monthly Roundup April 2019

Games Night poster - Monday 6th May 7pm

Again there’s been lot’s going on at DMD Pathfinders this month, the first thing you may notice is we now have a new donate button in the sites header!  We had been using MyDonate but this service is due to shutdown soon.  After trying to get a charity PayPal account and being denied, with them… Read more »

Drake Concert

I have a tip regarding going to a concert very far away. Find an accessible hotel (preferably with a ceiling hoist) and stay the night. I have done this on many occasions and it takes the pressure off. Then there are the times I think, “ah it’ll be alright” and this was one of them…. Read more »

Monthly Roundup March 2019

Glasgow forum flyer 12th May 2019

Let’s start off with some exciting news that all of us here at DMD Pathfinders have been eager to share! Development Workers DMD Pathfinders are pleased to announce that we now have two development workers employed for us, they both have Duchenne and will be job sharing.  Having development workers will allow us to do… Read more »