Category: General

Some advice from the Royal Brompton & Harefield NHS Foundation Trust

DMD Pathfinders logo

The Royal Brompton & Harefield NHS Foundation Trust have kindly given us permission to share the following advice sheet that has been sent to some patients. We would like to state that the situation with COVID-19 is fast changing and advice may change at any time.  Also everyone should consult their own specialists and hospitals for… Read more »

Coronavirus Bill could drive disabled people into crisis

Coronavirus Bill could drive disabled people into crisis   We have significant concerns about the Coronavirus Bill currently going through Parliament. While we recognise the efforts to maintain critical services during the Covid-19 pandemic, we are concerned that aspects of the bill removing duties under the Care Act could in fact drive disabled people into crisis and increase pressure… Read more »

My Anniversary

BY MITCH COLES I started working for DMD Pathfinders a whole year ago. I went from volunteering for the charity, writing the odd article or doing the odd talk, to a full-blown employee. It shows that hard work pays off in the end. I was looking for permanent work for a very long time and… Read more »

DMD Pathfinders statement regarding Coronavirus (COVID-19)

Guidelines concerning COVID-19 - Do wash your hands with soap and water often – do this for at least 20 seconds always wash your hands when you get home or into work use hand sanitiser gel if soap and water are not available cover your mouth and nose with a tissue or your sleeve (not your hands) when you cough or sneeze put used tissues in the bin straight away and wash your hands afterwards try to avoid close contact with people who are unwell Don't do not touch your eyes, nose or mouth if your hands are not clean

As a charity we would like to address the current situation regarding Coronavirus (COVID-19).  We who have Duchenne Muscular Dystrophy are at a high risk of complications arising from any respiratory type infection, so Coronavirus (COVID-19) is a source of concern. The official UK government description says A coronavirus is a type of virus. As a… Read more »

January 2020 Update – Looking Forward

The January 2020 Update roundup will mainly be a look forward to our plans for the upcoming year.  A big highlight of this year will be DMD Pathfinders Chair of trustees, Mark Chapman’s, Birthday.  Mark will be turning 50 this year, this is something we feel should be celebrated, so celebrate we will! We will be… Read more »

Care: An Ideal World

BY MITCH COLES In an ideal world, finding carers would be a lot like online dating. It’s already like dating in some ways. Ideally every carer would be on an online dating database with star ratings and all. All you would have to do is swipe left or right. It would have government backing and… Read more »

Monthly Roundup October and November 2019

Wheelchair painting

First of all apologies for missing the round up last month, I won’t give excuses but will try to not miss any more, so without further ado here’s our Monthly Roundup October and November 2019. We have had a busy couple of months with meetings, conferences, challenges and even our Christmas Party. In October our… Read more »

CHSW Teen Event

DMD Pathfinders Christmas Dinner

BY MITCH COLES On the weekend I was at Children’s Hospice South West’s Charlton Farm again, after being there in the summer to talk to them about what we can offer. This time we were there as part of their weekend teen event activities. They were having an I’m A Celebrity… Get Me Out Of… Read more »

GameChangers

Mitch sitting outside the NMC in Cheshire

BY MITCH COLES On the weekend, me and my PA’s went all the way to Cheshire to visit the NeuroMuscular Centre to represent Pathfinders. We were there for NMC GameChangers Fest, an event to gear up for their 30th Anniversary next year and highlight the younger generation. The NMC is somewhere I’ve always to visit… Read more »

Monthly Roundup September 2019

board game night October 26th 2019 Chance and Counters 20 Christmas Steps, BS1 5BS Bristol, United Kingdom

Welcome to our Monthly Roundup September 2019. Autumn and Health Autumn has hit rather quickly, with temperatures dropping and lots of rain!  Cold weather isn’t great for us with Duchenne.  Extra layers mean it takes a lot longer to be dressed and once outside we can get cold very quickly.  Driving a wheelchair with numb… Read more »