Category: General

Keech Event

On Saturday Jon, Tyran and Mitch headed to Keech Hospice in Luton for our information social day. We were given a warm welcome from Jackie Purdy who works at the hospice and received valuable input from Andrew Rose, a local neuromuscular advisor who helped in putting this event together. We covered a number of topics… Read more »

Monthly Roundup May 2019

Sports Night poster - Monday the 8th of July from 7 pm to 9 pm

Another month already!  Well let’s get started with everything going on here at DMD Pathfinders.  We’ll begin with a few events we have planned. Games Night After the success of our previous games night we are holding another one on the 19th of June at 7 pm, everyone is welcome and we are hoping this… Read more »

Meet Tyran, Our New Development Worker

Tyran in front of a rally car with two dinosaurs standing near him

Meet Tyran, Our New Development Worker Hi, I am Tyran Hawthorn, one of the new Development Workers at DMD Pathfinders.  I currently stay in Clanfield with my parents but have my own critically trained care team which enables me to be self sufficient and live relatively independently. I’ve also been to university where I studied… Read more »

Games Night Recap

Games Night poster - Monday 6th May 7pm

On Monday we held our Games Night. The plan was to play games on Jackbox and Boardgame Arena. In the end we opted to just use Jackbox, though others could still set up games through Boardgame Arena and also play their own console games. We used Discord as our communication hub, that supports text and… Read more »

Monthly Roundup April 2019

Games Night poster - Monday 6th May 7pm

Again there’s been lot’s going on at DMD Pathfinders this month, the first thing you may notice is we now have a new donate button in the sites header!  We had been using MyDonate but this service is due to shutdown soon.  After trying to get a charity PayPal account and being denied, with them… Read more »

Drake Concert

I have a tip regarding going to a concert very far away. Find an accessible hotel (preferably with a ceiling hoist) and stay the night. I have done this on many occasions and it takes the pressure off. Then there are the times I think, “ah it’ll be alright” and this was one of them…. Read more »

Monthly Roundup March 2019

Glasgow forum flyer 12th May 2019

Let’s start off with some exciting news that all of us here at DMD Pathfinders have been eager to share! Development Workers DMD Pathfinders are pleased to announce that we now have two development workers employed for us, they both have Duchenne and will be job sharing.  Having development workers will allow us to do… Read more »

DMD Mitch

Hi, my name is Mitch Coles and I am one of the new development workers here at DMD Pathfinders. I live independently in Bristol with my partner and two kids.  I’ve also been to university where I studied graphic design and I run my own blog. I have Duchenne myself; so working at Pathfinders means… Read more »

DMD Pathfinders February Updates

This has been a more visibly busy month for us, we have been recruiting, attended conferences and meetings, and discussing our aims as a charity.  Our chair and CEO explain it far better than I ever could so without further ado here’s some messages from them.   Mark Chapman Chair of DMD Pathfinders On behalf… Read more »

DMD Pathfinders January Update

We haven’t been quite so visible in our activities this month, this was anticipated and planned for by us at the end of last year, we knew January would be quiet due to few events happening early in the year and other organisations catching up after the Christmas/New Year break, our CEO was also moving… Read more »