About DMD Pathfinders

DMD Pathfinders is a user-led charity (reg. no. 1155884) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK.

Mission Statement

DMD Pathfinders is a user-led charity (reg. no. 1155884) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.

Aims and Objectives

  • To provide a voice for adults living with DMD.
  • To provide a forum for adults living with DMD to share experiences, ideas and opinions in complete confidence.
  • To provide information, advice and peer support to adults living with DMD.
  • To identify, promote, and develop best practice, innovative treatments and technologies for adults living with DMD.
  • To campaign and influence treatments for adults living with DMD within health and local authorities, government, relevant professionals, disability organisations and charities.
  • To work with health and local authorities, government, disability organisations and charities in improving care, support and services for adults living with DMD.
  • To increase awareness of adults living with DMD.

Please explore the website to find out more about who we are, what we do and the people that we support.