DMD PATHFINDERS HELPS TEENAGERS AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY LIVE LONGER, HAPPIER LIVES

News

Reflecting on the Action Duchenne conference

BY JON REY-HASTIE CEO OF DMD PATHFINDERS Today I have been taking a more leisurely pace to recover from a really busy weekend at the Action Duchenne conference. I found it particularly tiring this year, probably because I have had to coordinate it or dealing with a busy and extended moving process. As a result… Read more »

Getting research and treatments to adults

BY JON REY-HASTIE CEO, DMD Pathfinders  Last Friday DMD Pathfinders co-hosted a workshop with Duchenne UK dedicated to research for adults. Specifically, in the context of a rapidly developing research pipeline of new treatments for DMD, we were asking: how can we ensure these treatments benefit adults? The meeting was held at the International Centre… Read more »

DMD Pathfinders Nutrition Guide now out!

Information and advice on nutrition for adults with DMD. DMD Pathfinders is delighted to launch our Nutrition Guide for adults with Duchenne. We have worked with  health professionals from around the world to pull together existing best practice and experiences of adults  with DMD into a useful resource. User experiences were gathered from a survey of… Read more »