DMD PATHFINDERS HELPS TEENAGERS AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY LIVE LONGER, HAPPIER LIVES

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Monthly Roundup November 2018

This is a new idea we have come up with to keep people updated with what we at DMD Pathfinders have been doing each month, it will try to compile the information from our various outlets, and as we get more used to it probably stuff that the charity has done on in the background,… Read more »

DMD Pathfinders table at the Action Duchenne International Conference

Reflecting on the Action Duchenne conference

BY JON REY-HASTIE CEO OF DMD PATHFINDERS Today I have been taking a more leisurely pace to recover from a really busy weekend at the Action Duchenne conference. I found it particularly tiring this year, probably because I have had to coordinate it or dealing with a busy and extended moving process. As a result… Read more »

Getting research and treatments to adults

BY JON REY-HASTIE CEO, DMD Pathfinders  Last Friday DMD Pathfinders co-hosted a workshop with Duchenne UK dedicated to research for adults. Specifically, in the context of a rapidly developing research pipeline of new treatments for DMD, we were asking: how can we ensure these treatments benefit adults? The meeting was held at the International Centre… Read more »