DMD PATHFINDERS HELPS TEENAGERS AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY LIVE LONGER, HAPPIER LIVES

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CREATE: My Pandemic Story – Stephanie

This is when my ideas began to form and I started planning my documentary called Living In Fear. I wanted to use my filmmaking skills to investigate into how the Coronavirus was affecting disabled people’s lives, in terms of accessing food, care, work, socially, how they felt in isolation, but also what they were doing to maintain a healthy well-being.

Jamie sat in front of a fountain

CREATE: My Pandemic Story – Jamie

Jamie’s Pandemic Story In this series of articles, we will shine a light on the creativity, productivity and positivity that has emerged in our communities during lockdown. In this first article, our CEO Jamie talks about their experiences of writing during lockdown When lockdown started, I think I went into it in a better position… Read more »

Trustee in me

I’m Sarah and I am delighted to be joining Pathfinders Neuromuscular Alliance as a trustee. I have Ullrich CMD also know as Collagen VI myopathy. I have volunteered with my local Citizens Advice on the Research & Campaigns Team for the past 13 years and with MDUK, chiefly as one of the mods on their… Read more »