DMD PATHFINDERS HELPS TEENAGERS AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY LIVE LONGER, HAPPIER LIVES

News

Bobby Shearer relaxing in the garden

Getting used to living with a tracheostomy

BY BOBBY SHEARER So far my health during my life with Duchenne has been pretty dope. I’ve never had any real problems apart from the obvious. That changed a bit early last year when I had a bad chest infection, where I had to have a trache fitted. A trache (or tracheostomy) is a small… Read more »

Adaptive Android

Last week it was our Summer Miniconf and we had some fantastic speakers, one of them was Jamie Hale who spoke to us about adaptive apps for android. It was so good, we thought we would share it again. Have a read! While iPhone has quite a few accessibility settings built in, with Android there’s… Read more »

OPINION: The coronavirus shows up the weakness of our social values

This pandemic has hammered home the point that as the most vulnerable in our society, we are ultimately expendable in times of crisis. That the values that underpin our way of life, that tell us, as vulnerable people, we will be protected and embody our humanity as a society, can so easily be cast aside.