BY JON REY-HASTIE We recently wrote a letter supporting the extension of ataluren/translarna to people with DMD who are no longer ambulant (with no upper age limit). The letter also has relevance to other treatments being developed to treat Duchenne: Losing the ability to walk is often considered the major milestone of Duchenne Muscular Dystrophy… Read more »
BY MITCH COLES I’ve just got back from a very relaxing 4 night stay in Majorca. I took 2 friends / carers away with me to a pretty posh hotel and we were all well looked after. We stayed at the Ferrer Concord hotel in Can Picafort. It was about an hour from Palma airport… Read more »
We hope you are all enjoying the sunshine and summer in general, this time of year personally makes me want to get out and do more! First up this month is a catch up from DMD Pathfinders chair, Mark Chapman. Mark’s Catch up (written by Mark Chapman, Chair of DMD Pathfinders) I started this month… Read more »