Here’s our Monthly Roundup August 2019, better late than never! Summer seems to be winding down and here at DMD Pathfinders we are starting to look at upcoming events we are involved with. We hope to hold some sessions at the Action Duchenne International conference again this year. Next month we’ll be heading to Helen House… Read more »
BY JON REY-HASTIE We recently wrote a letter supporting the extension of ataluren/translarna to people with DMD who are no longer ambulant (with no upper age limit). The letter also has relevance to other treatments being developed to treat Duchenne: Losing the ability to walk is often considered the major milestone of Duchenne Muscular Dystrophy… Read more »
BY MITCH COLES I’ve just got back from a very relaxing 4 night stay in Majorca. I took 2 friends / carers away with me to a pretty posh hotel and we were all well looked after. We stayed at the Ferrer Concord hotel in Can Picafort. It was about an hour from Palma airport… Read more »