DMD PATHFINDERS HELPS TEENAGERS AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY LIVE LONGER, HAPPIER LIVES

News

GameChangers

BY MITCH COLES On the weekend, me and my PA’s went all the way to Cheshire to visit the NeuroMuscular Centre to represent Pathfinders. We were there for NMC GameChangers Fest, an event to gear up for their 30th Anniversary next year and highlight the younger generation. The NMC is somewhere I’ve always to visit… Read more »

board game night October 26th 2019 Chance and Counters 20 Christmas Steps, BS1 5BS Bristol, United Kingdom

Monthly Roundup September 2019

Welcome to our Monthly Roundup September 2019. Autumn and Health Autumn has hit rather quickly, with temperatures dropping and lots of rain!  Cold weather isn’t great for us with Duchenne.  Extra layers mean it takes a lot longer to be dressed and once outside we can get cold very quickly.  Driving a wheelchair with numb… Read more »

Social Saturday

BY MITCH COLES Last week, Jon and I travelled to Helen House in Oxford, where we met with Youth and Transition Worker Emma Jordan and a group of 17 and 18-year-olds with Duchenne. After almost running out of fuel on the way, I made it on time (I was actually early!), even if I did… Read more »